I related to this so much – having to deal with the uncertainty of your worsening chronic health conditions and protecting your daughter’s health, on top of the general Covid uncertainty everyone else is struggling with. Has your rheumatologist checked you out for hyper-mobility/Ehlers Danlos Syndrome? And have they tested you for autoantibodies linked to Myasthenia Gravis (MG) [anti-acetylcholine receptor (AChR)]? Going by your familiar symptoms, I thought I’d mention these in case the doctors haven’t looked into them. It took over 6 years for doctors to test me and they never would have if it weren’t for my own research. I don’t have MG, but I do have neuromuscular weakness and scored a low positive for AChR autoantibodies. My muscle weakness has greatly improved since taking Mestinon (usually prescribed for MG). I also have ME/CFS, Fibro and an autoimmune rheumatic disease which still debilitate my functionality, but I’d be far worse without treatments to help with some of my symptoms. I hope you’re able to find some answers and treatments. It’s a long and frustrating road zigzagging back and forth from ‘-ologist’ to ‘-ologist’.